Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being
Francesco Pagnini (ed.), Zachary Simmons (ed.)
Published:
2018
Online ISBN:
9780191817618
Print ISBN:
9780198757726
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Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being
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David Oliver
Pages
213–C13.P96
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Published:
February 2018
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Oliver, David, 'C13End of life: Wishes, values and symptoms, and their impact on quality of life and well-being', in Francesco Pagnini, and Zachary Simmons (eds), Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being (
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Abstract
The holistic assessment of the patient with ALS and their family will help to maximize the care as the disease progresses and the end of life approaches. This includes consideration of advance care planning, so that the person’s wishes are known if they lose capacity or communication late in the disease course. Discussion of ventilatory support, either by non-invasive ventilation or tracheostomy ventilation, is particularly important so that decisions are not made in a crisis situation. Although ventilatory support may improve quality of life (QoL) and length of survival, there may be increased dependency and continued disease progression. The recognition of the later stages of disease progression can allow further discussion and anticipation and preparation for end of life care—for patient, family, and professions—so that QoL is maximized until death.
Keywords: Palliative care, end of life care, advance care planning, communication, ventilatory support
Subject
Neurology Development of the Nervous System
Collection: Oxford Medicine Online
Disclaimer
Oxford University Press makes no representation, express or implied, that the drug dosages in this book are correct. Readers must therefore always … More Oxford University Press makes no representation, express or implied, that the drug dosages in this book are correct. Readers must therefore always check the product information and clinical procedures with the most up to date published product information and data sheetsprovided by the manufacturers and the most recent codes of conduct and safety regulations. The authors and the publishers do not accept responsibility or legal liability for any errors in the text or for the misuse or misapplication of material in this work. Except where otherwise stated, drug dosages and recommendations are for the non-pregnant adult who is not breastfeeding.
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